Updates

So I'm behind again! I will start where I left off- we ended up leaving the PCICU before lunch time!!! I love short PCICU stays! Got to 8D and we were a very needy room and have continued to be. Most of the day was uneventful but he was uncomfortable from the adverse side effects of morphine. He looked like he had been in match with Mike Tyson! We started him on oral and IV benedryl which helped calm him. He also needed several dressing changes and so we got him mild sedation to keep him comfortable. The night was rough. Thrashing continued, agitation, shaking etc. there wasn't too much we could do for him. 

That brings me to today. Throughout the night he had an exceptional amount of drainage, 1000mLs! For those of us not on the metrics, that's 4 and a 1/4 cups! In the morning he was comfortable at times and then had times of pain. We watched the same videos over and over. Jackson and I are pretty sick of Mickey and Oso but he loves it so whatever!! Fortunately there is an enormous video library here we can keep changing out when they are open. We got to spend a little bit of time with Hudson in the children's atrium and I think it did all three of us some good. All he wanted out of all the toys you can imagine to choose from was a bucket of balls! He is a ball player yet!

He likes to come visit and gets so excited to see Jack. He is worried about him though. If Jack cries he cries. It's pretty sweet. When we got back to the room Jack had decided he wanted to eat. We let him have at it. He didn't eat much and unfortunately lost all of it! As soon as he lost it Dr. Bradley walked in. He decided to restart Jack on a Milrinone drip to help his heart squeeze more since there is so much drainage. 

We got our first smile which was fabulous! 

He ate a decent about for dinner. Of course the nurse just came in and let me know he has chylous drainage. The levels were not too high but he also didn't eat much. They will probably make him eat a little more fat to see and then call it. That unfortunately means we are here for a while because there will be lots of drainage. Poor Jack. It's not like he hasn't been through enough. More to come!